Picture Post From Days in Oregon

At long last i have some pictures to share with you all. These are all pictures from the last month or two we were in Oregon.

BUN is 1, normal is 8-20. My normal was 4-5 for a while.

here she is getting 30 tubes of blood drawn. that day was pretty rough! I think it is actually illegal to take 30 tubes at once. The first vein they used blew around tube 23. They went to the other arm and by then she'd lost so much blood it just trickled, or dripped shall I say, into the tubes. 

this was a HIDA scan. it checked her gallbladder

this would be all of the empty Rocephin bottles, her old IV antibiotic 

the life of a Lymie  IV poles and supplies

This is what the PICC looks like without dressing. 

And here is with dressing. she named it but she forgets what the name was. As do i. :) :S 

A reminder that HE can carry you through

this was some hospital visit. By now i really forget which one. 

ER visit 1 of 3 in 3 days. This visit confirmed that she did have a blood clot and her line did need to go. 

Here she is with 2 IV accesses and a separate needle poke. They couldn't use her PICC line because of the blood clot, but they hadn't pulled the PICC yet. I think the 3rd poke was a failed attempt at getting her vein. 

trying to make it through a POTS attack

a walking video from December

Gilead was her little sunshine! He has curly hair and when hes fresh out of bed, like now, he has an afro.

brother love

Gilead loves her Chapstick and of course purses hold lots of treasures :)

Since she developed a blood clot in the vein, the PICC had to be pulled. #Kissingitgoodbye #tryingnottocry

Mourning the loss of her PICC line. It had really become part of her, and one day it was just pulled out. Never to be replaced.

the purple dot is the site of her exPICC line. 

Coumadin clinic in Oregon. a 30 min drive everyday for 10 days. All the while we were trying to pack up and move. Busy, stressful time.

A lovely eye mask gifted to her. It has light blocking material in it and you can NOT see any light through it. (i want one :)

George is folding his "John Baby" (aka a stuffed penguine) up like he saw aunt Nell fold her body up.

Hypermobility... i call this the praying mantis pose.

lovely Oregon sunsets. 

insomnia and pain are her world

the 4 yr old having fun posing. :)

Sad to be moving away from Oregon!

"this feels like death" This would be a blood pressure reading of 73/40 with a pulse of 125. The monitar says "ok", how ironic.

trying to look normal.