Link to Nellie's blog

Here is a link to Lynnelle's personal blog if you all would like to keep up with her spuratic posts. :) She isn't often able to update but some times she can.

Sleep Study

A couple of weeks ago Nellie got her sleep study done and boy was it an experience! The place was only slightly creepy. "Just a lil bit!" Bed skirt was torn, curtains sagging etc. It gave me the impression of a nice room you'd rent by the hour, not one you would go to for a sleep study! You are so hooked up to cords, we're not sure how anyone could sleep very well though!

First Week of Treatment

Unfortunately i've been too busy to update earlier. Lynnelle has her first treatment a week ago today. She infuses antibiotics twice a day on Mondays, Wednesdays, and Fridays, 3 weeks on, 1 week off. On the off days she does lactated ringers for detox.

 Last monday we went to Outpatient at the hospital to have her dressing and needle changed. It was a very bad and traumatic experience. The nurse didn't know what she was doing, and so things were stressful. Not to mention it was very painful for Nellie since the port had only been in 7 days.  They'd tried to draw blood from it, and it wasn't working. A blood clot formed in her line due to the design of her line, so Thursday we went back to Outpatient to get the needle and dressing rechanged. We didn't want the clot moving and decided to play it safe rather than sorry. 


We were really glad we got the whole thing changed when the nurse pulled blood clots out of her port when she was flushing the new line. There was just some big problems with Mondays dressing.


Needless to say, we are very grateful that we have Home Health set up to come out to the house and do dressing and needle changes. At least we don't have to go some place to get it done.  


Now for some pictures...

Here is the port unaccessed. Not much to see since it's all below the skin, but the port is the lower, bigger bump.

 Here it is accessed. Not much to see from this angle either. The blue end is what she screws her lines into to drip the infusions.

Lila Sue got the privilage of going to D.C. with her mama and papa when they went for Aunt Nell's dr. visit. :) she liked rides in the wheel chair!

This was the first treatment at home..

this is what happens when you still have some fluids left to drip when you hurry out the door for an appointment. :)

Here is the blood clot in her line. She said it would move a bit when she would flush the line.

And this is how we shop! I figured out a way to prop the basket on the back of her chair. I was pretty pleased with myself. i can't easily hold a heavy-ish basket and push a chair, and its big for her to hold on her lap. Extra props for putting it here and her not even knowing it until the stuff she kept handing me was 'going into oblivian' ;) yay!

Still waiting

Nellie called me at 2 and said they were running late and she still hadn't been taken back for surgery. Hopefully by now, she is in surgery!

"Happy Birthday Papa!!" is the caption of this picture. Papa would have been 56 today. 

"Having fun." was her caption. She was really just missing me. :)

They have embarked!

Mom and Lynnelle left around 10:30 this morning for the airport. They were scheduled to arrive at Washington-Reagan around 5:30 tonight.  In times like this, i consider no news to be good news. :) i haven't heard from them since they were at their gate in Detroit, but i am not worried. If i felt the need, to know, I'd call them. :) I am sure they're are tired from the day.

Yesterday was a very full, stressful and tiring day! It was full of various home projects and helping them get ready. I also worked on book work for hours.

Tomorrow arrival time at the George Washington Hospital is set for 11:30 and surgery is set for 12:30. Prayers would be greatly appreciated! Tuesday they head to Dr. Jemsek's office and do first antibiotic treatment. Wednesday they fly home again.

I'll try to keep this thing updated better. sorry about the infrequency of posts.

May i shout from the roof tops?!?!

Lynnelle officially has an appointment Monday for her port surgery in D.C. This is so exciting!! I don't have much else to say at this moment. This is very recent so i'm not sure if we even have tickets yet.

thanks to all of our supporters! you mean a lot to us!